We are a community of people living with SMA, their families, doctors and researchers — working since 2014 for early diagnosis, better care and affordable treatment for every Indian with SMA.
Understand the diagnosis, find SMA-aware doctors and connect with families who have been there.
Fund treatment and equipment, volunteer your skills, or bring your company on board as a CSR partner.
Clinical summaries, Indian standards of care and our national SMA conference, SMArtCon.
SMA is a genetic condition that affects the nerve cells in the spinal cord which control movement. Muscles used for crawling, walking, sitting up, swallowing and breathing become progressively weaker.
It is the most common genetic cause of death in infants — but it does not affect intelligence, and with the right care and treatment, children and adults with SMA can lead full lives.
Learn about SMAGenetic. Caused by a missing or faulty SMN1 gene, inherited from both parents.
Four main types. From Type 1 in young babies to Type 4 in adults.
Treatable. Approved therapies now exist, and treatment has been available in India since 2021.
Early diagnosis matters. A simple blood test confirms around 95% of cases.
Founded by parents of children with SMA, we combine practical support for families with advocacy for policies that make treatment reachable.
Counselling for newly diagnosed families, genetic counselling and a parent network across India.
Multidisciplinary clinics with neurologists, orthopaedics, pulmonologists, dieticians and physiotherapists.
Working with the government, regulators and industry for affordable access to SMA treatments.
Conferences, webinars and SMA Awareness Month every August, so SMA is diagnosed early.
Karan Shah grew up with Type 3 SMA in Mumbai, a city that is not wheelchair-friendly. Read how he found his voice.
We are honoured to welcome Manasa Varanasi, Femina Miss India 2020, as the Brand Ambassador of Cure SMA India, raising awareness for Spinal Muscular Atrophy and supporting families across India.
Cure SMA Foundation of India organized a session on SMA support care for parents of children with SMA in collaboration with BLK Super Specialty Hospital, New Delhi. All the doctors from various disciplines shared…
For registeration click below: Ganga Ram Hospital Registration
Our national conference brings together clinicians, researchers, policy-makers and families. The third edition, SMArtCon 2025, focused on a collaborative care model for rare diseases.
About SMArtCon
We receive no government funding. Your gift pays for counselling, clinics, assistive devices and hospital care for families who cannot afford them. Donations are eligible for tax benefit under Section 80G.
