Aarav Sharma
The birth of our son 'Aarav' filled our lives with happiness and joy that only a mother's heart can hold. Like any first-time parents, Aarav's every new milestone – his smile or his waving hands – was a marvel. It was a…
Stories of SMA warriors
Every person with SMA has their own story. These are told in their own words — with courage, humour and honesty.
Children
Parents share the journey of raising a child with SMA.
Aiza
August is SMA Awareness month. On the 23rd of this month, it is also the second Memorial Day of my first baby. The greatest joy came into our lives four years after we got married! Pregnancy was quite normal without any…
Sharon
We are blessed parents of two special children Shaun is a non-vocal, hyperactive boy with autistic features. Sharon is diagnosed with debilitating SMA. Taking care of their little things keeps us engaged always. But…
Adults
Adults with SMA on growing up, studying, working and living on their own terms.
Karan Shah
My name is Karan Sunil Shah. I am 21 years old. I have type III Spinal Muscular Atrophy or SMA. SMA is a genetic disease that affects the motor nerves that control voluntary muscle movement. It was tough growing up…
Manoj Mohan
I'm Manoj Mohan, from Trivandrum, Kerala. I suffer from SMA Type 2. I'm 37 years old now and work as Chief Manager in a bank. The onset of symptoms was observed at around 1 year of age due to delays in achieving…
Pratyush Nalam
Giving birth to a new life is an amazing experience. It is the beginning of a great adventure full of surprises and twists and brings a great responsibility. When our son was born, he became the center of our very…
Rajasekar
My name is Rajasekar. I suffer from Spinal Muscular Atrophy and was diagnosed when I was 7 years old by a muscle biopsy. Doctors said that I could not walk after reaching my teenage years but suggested to do…
Rustom Irani
I've only lived a life with caregivers. Born with Spinal Muscular Atrophy, a neurodegenerative disorder, I was diagnosed in my teens. As the disease is progressive, it continues to weaken my motor skills, my ability to…
Share your story
Your experience could be exactly what another family needs to hear. Write to us atinfo@curesmaindia.org — we'll help you tell it, and nothing is published without your consent.