Social media campaign
Our campaign on social media was carried out throughout the 31 days of August. There are so many different facets to living with SMA. Scientific fact sheets and a diverse range of stories were put together and shared…
Every August
SMA Awareness Month
The SMA community around the world recognises August as Spinal Muscular Atrophy Awareness Month — a time to share stories, spread knowledge and push for early diagnosis and access to treatment.
How you can take part
Share on social media
Post facts about SMA and your story with #SMAAwarenessMonth and tag @curesmaindia.
Join a webinar
Every August we host sessions with doctors and therapists on care and treatment.
Walk, run or ride
Organise or join a community event and raise funds for SMA families.
Donate
Help us fund equipment, clinics and hospital care for families who need it most.
Awareness Month in past years
Webinars on respiratory care and treatment, a round-table on universal access to life-saving medicines, a candle lighting ceremony, art and fancy-dress competitions and a musical evening for our SMA warriors.
A virtual musical program for the entertainment of the kids and families was organized on 29th August
A virtual musical program for the entertainment of the kids and families was organized on 29th August . Children of all ages participated with excitement and sang songs from all languages and made the program a
A webinar on multidisciplinary management and awareness sessions for SMA
A webinar was organized on August 28th in association with Aster MIMS hospital, Calicut on multidisciplinary management and awareness sessions for SMA. We had specialist doctors from neurology, orthopedics,…
An art competition was announced to the children
An art competition was announced to the children on 24th August , which encouraged them to color and draw according to their age group. It helps in building their fine motor skills and promotes their self-esteem and…
A candle lighting ceremony
At sunset, on August 22nd we held a candle lighting ceremony in remembrance of those who died of SMA, and to honor those living and fighting with it every day. We hope to bring awareness about SMA and unity to the…
Virtual fancy dress competition for our SMA warriors
On the occasion of Independence Day, 15th August , we conducted a virtual fancy dress competition for our SMA warriors. In these Covid and lockdown times, it is especially important for all of us to support our children…