October 2018
Roche is a global pioneer in pharmaceuticals and diagnostics focused on advancing science to improve people’s lives. Roche is developing a molecule Risdiplam that is helpful in treating Spinal Muscular Atrophy, the crippling neuromuscular genetic disease.
Alpana Sharma was invited as Guest Faculty to speak about patient Empowerment at the Annual Function of Roche Pharmaceuticals. She shared about inception of Cure SMA India, stories of stellar performances of our SMA patients and the fact that with each passing day the disease is spreading like poison in their bodies. Also spoke about importance of Self Advocacy especially in rare diseases as it affects the minuscule population. Roche assured that they are willing to help the SMA Patients by ensuring accessibility of Risdiplam, when it is released in market.
SP Jain Institute of Management and Research, Mumbai, in association with Novartis, one of the leading healthcare company has conceived and launched a unique organizational development program “SAKSHAM”, customized for…
Met Sarita Chandra and Tamsi Nayak, FICCI, New Delhi. Attended by Archana
An awareness seminar was held to discuss the standard of care for SMA in collaboration with Bangalore Baptist Hospital and Organization for Rare Diseases India . The main aim is to disseminate protocols and socs for SMA…