Chief Economic Advisor of India to discuss on funding for SMA treatment
Met the Chief Economic Advisor of India to discuss on funding for SMA treatment. Attended by Archana Panda, Alka Vij, and Dhruv
Participated in round table discussion on the National Rare Disease Policy
27 May 2019
Participated in round table discussion on the National Rare Disease Policy organized by Health Issue India. Attended by Archana Panda. Cure SMA India emphasized on the need for a sustainable economic funding model, to establish medical protocols for all rare diseases, significance of genetic screening and counselling for prevention of rare diseases.
Related news
Met Dr. Harsh Vardhan, Minister of Health and Family Welfare, Government of India
Met Dr. Harsh Vardhan, Minister of Health and Family Welfare, Government of India. Attended by Alka Vij, Archana Panda, and Dhruv
Meeting with Director General controller of India
Meeting with Director General controller of India. Attended by Alpana Sharma, Shashee B. Vij, Deepti Jagota, and Alka Vij. The urgent need to get the SMA drug to India was