Hello everyone. We are extremely happy n excited to release our first Annual book “The Journey…. CureSMAIndia” Edition 1 on this International Rare Disease Day 2day. We have tried to incorporate most of the work done by team CureSMAIndia in 2019. With few members dedicated efforts we have reached so far. I m sure if all members get active then we can surely reach our goal soon as the clock is ticking for all of us. Hope you all like it. Kindly share your feedback at curesmaindia@gmail.com. Continue to participate and send pictures n videos to curesmaindia@gmail.com so that your picture also gets included in next year’s edition. Thanks to Ashwini, Moumita, Alpana, Srilakshmi, Karimulla and Satish for all the support in making this happen today.
We are honoured to welcome Manasa Varanasi, Femina Miss India 2020, as the Brand Ambassador of Cure SMA India, raising awareness for Spinal Muscular Atrophy and supporting families across India.
Spinal muscular atrophy is a rare, genetic neuromuscular and a progressive disorder. The SMA community officially recognizes August as “Spinal Muscular Atrophy Awareness Month”. During this unusual year, we still worked…