On 9th August, we had a virtual round table discussion on “Universal access to life saving medicines-challenges and solutions”. This was the first multi stakeholder discussion on Spinal Muscular Atrophy in India. This is starting point of identifying, categorizing challenges, and working towards finding a sustainable universal access to the lifesaving medicines. It involved DCGI, CDSCO, patient advocacy groups from Europe, representatives from Biogen, Novartis and Roche, doctors/clinicians from all major hospitals from North, South, East and West India, along with Cure SMA India.
We are honoured to welcome Manasa Varanasi, Femina Miss India 2020, as the Brand Ambassador of Cure SMA India, raising awareness for Spinal Muscular Atrophy and supporting families across India.
Spinal muscular atrophy is a rare, genetic neuromuscular and a progressive disorder. The SMA community officially recognizes August as “Spinal Muscular Atrophy Awareness Month”. During this unusual year, we still worked…
Virtual physiotherapy awareness program by Dr Gaganpreet